I’ve been talking to a lot of people recently, many with lupus, and a similar story seems to emerge. We are on medication and we don’t necessarily feel that much better than we did before we started taking it.
Why is this? Maybe because there hasn’t been a new drug produced specifically to treat lupus in nearly 4o years.
I wonder if instead of having cancer, Tony Snow or Ted Kennedy, or any other popular politico, had lupus (not that I wish illness on anybody), if we would see an increase in research funding.
On the other hand, I found out that Barbara Bush has lupus and clearly that has made a big difference in the cause (as in it hasn’t).*
So what do we do about it?
How many more have to die from a disease that they shouldn’t die from?
* This isn’t meant to be a political piece in terms of which side of the political divide I fall on. This is a commentary on the lack of research funding and just so happens to involve (sort of) the current administration…