I went from being a forward-looking person to having no future at all. When things were all over the place and the doctor’s weren’t really sure in what direction things we headed, I’d be shocked at the fact that they would schedule appointments three or four months in advance. Who plans that far in advance? Am I going to be around then? There was a point where I really didn’t know what life was going to be like. Every morning I woke up with a new, bizarre, unexplainable symptom, and yet, no one, including me, had any idea what was going on.
I think that being told you are sick is difficult, but if you have a diagnosis, at least you know. The not knowing is absolutely unbearable…
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