A few weeks ago, I forgot to take my meds. Well, more accurately, I accidentally took my evening meds in the morning, which meant I couldn’t take my morning meds that I missed. No harm, no foul, right?
The next day, before and after taking my morning meds, I felt awful. I was in pain all over and felt nauseous and dizzy. I stayed in bed all day. It was really terrible. I felt like I was going into a flare.
And I had a frightening realization for the first time ever.
I am medication dependent.
I can barely go one day without meds without feeling terrible. Seriously? So when I saw my rheumatologist recently, I mentioned to her what had happened and she basically agreed that, that means the meds aren’t working as good as they should be. This is really frustrating.
The goal is for me to be stable, but one day of missed meds and feeling awful means the opposite of stable.
I’ve also learned that I can’t take my morning meds much later than 11:30 a.m., or I will feel bad all day. So there is a very small window in which taking my daytime meds actually works. I have a similar issue with nighttime meds in that I can’t take them much beyond 1 a.m., but the difference is that my nighttime meds are more for helping me sleep and less about treating my lupus and RA.
After discussing these issues, my rheum talked about clinical remission and how it is still possible for me. I am not convinced. How can I go barely a day without meds without being incapacitated and believe that remission is a possibility in the near future?
I don’t even like thinking about the term remission because I don’t really know what it means. I mean, I know what remission is, but it seems like such a lofty goal, a goal I’ve never really considered pursuing before.
For me, the bigger goal is preparing my crazy wired body for pregnancy sometime in the next several years. And whether that comes with remission or not is anyone’s guess.
I very rarely make mistakes in taking or forgetting to take my meds altogether. But it’s frustrating to know that I don’t even have a day grace period.
It means I can’t mess up. It means I have to be perfect all the time. And I guess that may be one of the reasons that I have always focused on medication above other things, like diet and exercise. Now that I’m back to really thinking about those other things, it’s even more annoying that I’m medication dependent.
It’s much easier to take meds when you know they work, or you have the expectation that they will work. And when you experience the meds not working because you didn’t take them, it’s sobering to realize that your health or lack thereof is totally dependent on meds and your ability to take them.