OMG! Do I really look like this when I talk? Anyway, this is the prednisone vlog. I'll warn you, it is a bit on the long side (about 11 minutes), but there is a bit of repeating. I hope to try and do one vlog a month. Let me know what you think about this one, and feel free to give any suggestions you have about the topic of future vlogs.
3 comments:
Leslie, sorry to hear about your experience with prednisone. My mother has been on prednisone for the past 2 years for her sudden onset severe asthma. As a result of this, she has facial swelling, rashes, weight gain, depression, joint pain, and extreme fatigue. She has also developed osteoporosis because of it. It is truly awful. I didn't understand why she felt the way she did but after watching your video it makes sense.
Also I'm about to be diagnosed with RA so I may have to take it as well. Sigh.
I have had 3 journey's with pred. I swear it's the devils playground. I had an open talk with my rheumy and we collectively decided it's not for me. I broke my foot, my finger and then rebroke my foot while on it. NOT cool. I don't know what I will do in the future but for today, no pred. I started enbrel two weeks ago. I'm hoping so very much this helps my pain and inflammation.
What is good for one is horrible for another so I tell others, do what YOU feel is best for YOU.
Hugs
T
Hi Leslie, I found your vlog really helpful as I started 10 mg prednisolone (UK spelling) 3 wks ago for a flare in my lupus symptoms. So far so good, although I am acutely aware of all the potential side effects. I guess in the long term it really depends on how bad our symptoms get, & especially if they become life threatening, then we have no choice but to take the steroids as they are the only thing that works quickly & effectively which is available at the moment. I would like to ask how you & any of your blog readers have found the steroids help with fatigue? I am on a low dose, & my fatigue is definately improved but still my biggest issue. Any comments would be gratefully received. Best wishes for the future Leslie, your blog is so helpful & inspirational. X
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