Friday, February 27, 2009

Lupus Advocacy Day: March 3rd, 2009

Here is some information about how you can get involved in Lupus Advocacy Day that Wick from the Lupus Foundation of America Blog (On the Road to a Cure) requested I post for my readers:

March 3, 2009 is the Lupus Foundation of America’s 11th Annual Advocacy Day on Capitol Hill. Even if you cannot physically join us on Tuesday, there are still several things you – and your family and friends – can do to help raise awareness about the seriousness of lupus.

· Call your Representative and Senators and tell them to provide more funding for lupus research. To find your Senators and Representative, go to and click on the link “Call your Members of Congress Tuesday, March 3rd!” Then you will enter your zip code, and get the contact info for your senators and representative.

· Send an e-card. Raise awareness about lupus and the need for new treatments by sending your friends and family an e-card. Go here to send an e-card.

· Donate. With your donation we can continue to fund cutting-edge lupus research. Go here to make a donation.


There is one very simple thing you can do in Facebook. Below is suggested text that you can use for your status on your Facebook account for Tuesday, March 3, 2009. Encourage your family and friends to change their statuses as well.

“YOUR NAME is encouraging friends and family to support the LFA’s Advocacy Day. Tell Congress 50 years without a new FDA-approved lupus drug is too long


If you have a Twitter account and are joining us for Advocacy Day, you can “tweet” your Advocacy Day experience. You might want to post updates such as “Heading to Capitol Hill now” or “Meeting with Senator Young.”If you’re not able to be on Capitol Hill, you can still use your Twitter account to encourage people to call their Senators and Representatives, and raise awareness about the need for new, safe, tolerable, and effective treatments. Below are some suggested “tweets.”

“Support LFA’s Advocacy Day tomorrow. Tell Congress 50 years without a new
FDA-approved lupus drug is too long.

“Join me and call Congress and tell them 50 years without a new FDA-approved lupus drug is too long.

1 comment:

  1. Thank you so very much for sharing this information. Every bit of awareness helps.

    best, Wick