Getting Closer To Myself

I recently rented and watched “Words and Pictures”. For those who don’t know, “Words and Pictures” is a film starring Juliette Binoch...

The last two months have been some of the most difficult of my life. Learning to live to without someone so close and important to you is ...

Today I called my compounding pharmacy to refill my prescription for Quinacrine.   I received a call back from my pharmacy saying that t...

I had the honor of attending the Stanford Medicine X conference in California this past week.   Why that title – “It’s Okay Not To Be ...

When I first got sick, I had to re-evaluate my life.   I had to adjust what my expectations of normal were.   And now, after the tragic and ...

You know me.   When it comes to gimmicky advocacy efforts, I tend to be a curmudgeon.   In the past, my major beef has been with the “Pi...

This post isn’t specifically about chronic illness, but it is about life and death, and what the really important things in life are. On...