tag:blogger.com,1999:blog-5532388825298713035.post7719043799519112447..comments2024-03-22T13:46:31.211-04:00Comments on Getting Closer To Myself: Dear World, I know I’m Too Young For This, So Stop Telling Me So!Lesliehttp://www.blogger.com/profile/13910940045470516414noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-5532388825298713035.post-53882651346634566502012-02-18T23:37:41.586-05:002012-02-18T23:37:41.586-05:00I've gotten that too, even from my doctor. Fr...I've gotten that too, even from my doctor. From other people, it's not as big a deal, although it seems like a meaningless comment, but when my doctor said it, I wanted to say, "Ok, then why can't you figure out what's wrong with me and an idea for fixing it?"Rachaelnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-72074175907229404042011-01-29T18:26:21.094-05:002011-01-29T18:26:21.094-05:00I get this. all. the. time. with my type 2 dia...I get this. all. the. time. with my type 2 diabetes.<br /><br />Yeah. Like I wanted it.Rachelhttp://talesofrachel.comnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-29718796929245566142011-01-24T22:30:29.496-05:002011-01-24T22:30:29.496-05:00"So much of a chronically ill person’s time i..."So much of a chronically ill person’s time is spent dealing with healthy people and the stupid shit that they say and do. I think many of us try to educate those around us about how best to treat a sick person. This usually means treating us like we are people, and not acting weird or saying inappropriate things. This isn’t rocket science, people, it’s common sense. "<br /><br />I like this statement!<br /><br />Also, really all we need is REAL EMPATHY!!!!!!!! My good friend has mono right now and keeps on bitching about how tired she is...like bitching a lot, and I told her I feel like that daily and have for the past ten years plus and she totally snubbed me and said, "well this doesn't feel normal for me!" Doesn't give her any more right to complain, when I never complain.brittahttps://www.blogger.com/profile/17364260264700856613noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-73361099485368695682011-01-23T19:09:35.306-05:002011-01-23T19:09:35.306-05:00I would completely agree! It's like "wel...I would completely agree! It's like "well yeah I'm too young for this...NO SHIT sherlock!" Thanks for re-affirming this. But then again, I don't really think they know what to say. Because you can't truly understand it until you live through it yourself.<br /><br />The only other most annoying this is unsolicited advice!Khttps://www.blogger.com/profile/15275723559034096638noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-56430592620453332602011-01-22T22:29:35.654-05:002011-01-22T22:29:35.654-05:00Don't take it personal. They really do not kno...Don't take it personal. They really do not know what to say because your case is quite rare under normal circumstances but most people can not understand Lupus because it makes no logical sense.Sisitergirlhttp://inspiringsisiters.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-12346707420745559222011-01-21T17:54:12.983-05:002011-01-21T17:54:12.983-05:00Yes and the favorite of "You look so good&quo...Yes and the favorite of "You look so good" which in their minds mean I must be making it up that I'm "sick" b/c I look "good"<br /><br />Hang in there!Jodihttps://www.blogger.com/profile/06425245107783930386noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-89903725451459342412011-01-21T14:51:40.196-05:002011-01-21T14:51:40.196-05:00"I’m so sorry this is happening to you. It sh..."I’m so sorry this is happening to you. It shouldn’t be happening to you. You don’t deserve this."<br /><br />I do believe that the above is exactly what the vast majority of people mean when they say "But you're too young for that...!" But I understand your frustration, too. People said it to me regarding my RA back when I WAS still young. ;o) If it's any consolation, as you age, they'll stop saying it.<br /><br />In the meantime, patience and grace work best. If there's time, and they're open to it, explain to those who tell you you're too young to have lupus and RA WHY you really aren't.<br /><br />No, they're not being helpful by saying that. But then, how could they be? We don't want sympathy, either, and most of us don't want people falling over themselves trying to help us, as it's embarrassing and draws attention. I think maybe "normal" people are between a rock and hard place when faced with debilitating disease in others -- just as we are in ourselves.<br /><br />Best to you, Leslie. Sending calm, warmth and hugs your way.Wrenhttp://www.rheumablog.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-11458157791132384462011-01-21T14:09:01.835-05:002011-01-21T14:09:01.835-05:00Yes, thank you for sharing this. I am also 25, and...Yes, thank you for sharing this. I am also 25, and sooo sick of hearing these things, too. You've stated how I feel very well. I just wish that none of us had to deal with it. Blessings.Jamiehttps://www.blogger.com/profile/12251221896260997647noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-81357600113606455452011-01-21T13:26:17.180-05:002011-01-21T13:26:17.180-05:00Substitute my own health issues for yours, and I&#...Substitute my own health issues for yours, and I've heard the exact same platitudes a thousand million times. It gets old. <br /><br />Thanks for sharing your thoughts. It's unfortunate that we young, sick folks have to put up with ridiculous blanket statements, but it's nice to be reminded that I'm not alone in it.stephhttps://www.blogger.com/profile/10376314727233594908noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-89196846167800309742011-01-21T11:05:22.978-05:002011-01-21T11:05:22.978-05:00Leslie, this post touched me at so many levels! It...Leslie, this post touched me at so many levels! It's probably everything that I would want to say to the world. Thanks for being the voice for so many. <br /><br />P.S.: Have shared the link on FB, Hope that's okay!Shweta Chaubeyhttps://www.blogger.com/profile/04780544215237456132noreply@blogger.com