tag:blogger.com,1999:blog-5532388825298713035.post6135549489570509445..comments2024-03-22T13:46:31.211-04:00Comments on Getting Closer To Myself: Traveling (Alone) With Lupus And Rheumatoid ArthritisLesliehttp://www.blogger.com/profile/13910940045470516414noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5532388825298713035.post-77157296593337097872011-07-04T22:22:57.310-04:002011-07-04T22:22:57.310-04:00Just discoverd your blog. I was just diagnosed wi...Just discoverd your blog. I was just diagnosed with both lupus and RA and am having trouble finding much info on the combo. I look forward to reading about yur journey.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-58291375608608763522011-06-14T20:00:14.794-04:002011-06-14T20:00:14.794-04:00Jessica and Aviva, I know you were both curious, s...Jessica and Aviva, I know you were both curious, so here is the link to my Health Central post, as promised:<br /><br />http://www.healthcentral.com/rheumatoid-arthritis/c/568286/139676/medLesliehttps://www.blogger.com/profile/13910940045470516414noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-13504088370261046592011-06-02T13:26:36.080-04:002011-06-02T13:26:36.080-04:00So much going on! You have so much on your plate ...So much going on! You have so much on your plate right now, I know it's hard not to be overwhelmed. And stressed. Of course, what does that lead to....well, we know.<br /><br />I hope you survive the summer with less pain, and find some time to relax.<br /><br />good luck!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-68559379574444494272011-05-29T16:50:33.899-04:002011-05-29T16:50:33.899-04:00Jessica and Aviva,
I will be writing a more detai...Jessica and Aviva,<br /><br />I will be writing a more detailed post about Quinacrine for HealthCentral, and will post the link here once it is up.<br /><br />And thanks for both saying you'll be there in spirit. That makes me feel better!<br /><br />LeslieLesliehttps://www.blogger.com/profile/13910940045470516414noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-44728672584202601882011-05-26T17:20:29.150-04:002011-05-26T17:20:29.150-04:00I'd love to know more about that new med too. ...I'd love to know more about that new med too. I've never been able to tolerate Plaquenil, and I'd love to try something in the same class that maybe I could tolerate enough to see if I benefited from it.<br /><br />Good luck with your travels. There are definite benefits and hardships to traveling both solo or with others. <br /><br />Don't be afraid to take advantage of services the airports can offer you -- like a ride to the far end so you don't exhaust yourself walking. <br /><br />Can't wait to see the "in my bag" post!<br /><br />Like Jessica says, we'll be there with you in spirit. We're all rooting for you, Leslie!!Avivahttps://www.blogger.com/profile/16411667763810131618noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-28884639830776541372011-05-22T23:04:41.801-04:002011-05-22T23:04:41.801-04:00Ok, about the new med - tell me more. Plaquenil w...Ok, about the new med - tell me more. Plaquenil was good for me until it started causing these weird burny headaches. So i've progressed up the ladder a few times towards the scarier drugs usually held aside until more disease involvement for various side effect reasons. I'd rather be on the Plaquenil for various reasons, but hate the burny headaches. What's the difference with your drug? Oh, and safe travels. You won't travel totally alone - we'll all be with you in spirit gal!Jessicahttps://www.blogger.com/profile/07469382982063659778noreply@blogger.com