tag:blogger.com,1999:blog-5532388825298713035.post1575789616918946233..comments2024-03-22T13:46:31.211-04:00Comments on Getting Closer To Myself: Can You Say Chronic Illness Burnout?Lesliehttp://www.blogger.com/profile/13910940045470516414noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5532388825298713035.post-81445231777301486102012-09-29T01:13:46.223-04:002012-09-29T01:13:46.223-04:00I know exactly where you are coming from right now...I know exactly where you are coming from right now!! I sit here fresh from my second ER visit this week..I have been flaring for 2 weeks and the pregnisone has inspired some amazing bronchitis. I am newly diagnosed and I just keep thinking, "A year ago I was living a mostly normal life. Now I can't even go outside during the day." I would love to say, stay strong my sister, but today I feel like the world has shit on both of us, so let's just say Damn lupus sucks!Danielle Pikulhttps://www.blogger.com/profile/15517628469420867909noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-23810362314024690942012-09-25T21:49:15.581-04:002012-09-25T21:49:15.581-04:00Hi Leslie,
Cuz I'm a doc I'm attending a ...Hi Leslie,<br /><br />Cuz I'm a doc I'm attending a family med review this week. One of the speakers said THE thing that makes a doctor GREAT is actually caring about their patients. Another speakers said, what we knew 100 years ago in medicine, we now know to be wrong. In another 100 years, we will know that everything we are doing now is wrong. But the thing that hasn't changed since Hippocrates is that the physician needs to have compassion. <br /><br />One of the speakers referred to the "specialists" as the "partialists." Try that on one of your specialists, if they have a sense of humor.<br /><br />As a doctor with chronic medical disease; my experience is pretty much the same as yours. <br /><br />I really hate going to see doctors. It sounds like a good idea, I am hopeful they will figure everything it all out and I will feel like I did 10 years ago! But usually while I am waiting, my hopefulness recedes and I get an anxiety attack. Even for myself; sometimes I find doctors putting words in my mouth and it happens so fast they are already out of the room by the time I am ready to speak up for myself. (I know they are going throught their differential diagnosis and trying to make something stick). Hmmm.<br /><br />It is wonderful that you have such a great support system! Your blogs always cheer me up, even when you are down, because I know I am not the only person who is going through this mess. <br /><br />Fondly,<br />Judy Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-54448775781741221812012-09-25T15:34:37.271-04:002012-09-25T15:34:37.271-04:00Ha - sorry. I read your post with full sinuses and...Ha - sorry. I read your post with full sinuses and one bleary eye, a little bit stoked up on cold medicine. I just couldn't read straight.Duncan Crosshttp://duncancross.netnoreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-28165699532800715842012-09-25T14:17:34.983-04:002012-09-25T14:17:34.983-04:00Thanks, Duncan! I haven't. They are trying t...Thanks, Duncan! I haven't. They are trying to keep me at bay until the next round of labs in just under two weeks. Colposcopies. A gyno procedure. Something as a man you shouldn't ever have/I hope you don't have to go through.Lesliehttps://www.blogger.com/profile/13910940045470516414noreply@blogger.comtag:blogger.com,1999:blog-5532388825298713035.post-14636045177428460122012-09-25T08:18:58.825-04:002012-09-25T08:18:58.825-04:00Sorry to hear things are so rough. Have you talked...Sorry to hear things are so rough. Have you talked to your doctor (any of them) about pain management? Even if the source of the pain is an underlying illness, if the doctors can't treat that illness they should be able to something about the pain. <br />Also, what's up with the colonoscopies?Duncan Crosshttp://duncancross.netnoreply@blogger.com