I don't always share that much here about my academic work, but I was recently interviewed about it, which is really exciting!
If you are interested in listening to the interview, it can be found at the Support For The Short website by scrolling down until you find my name, or you can directly listen to Part 1 and Part 2 of the broadcast.
For my Illness Narratives class, we had to create our own graphic novel. I got really into it, so I drew it out and then computerized it.
I am sharing the hand-drawn version today and will share the computerized version later this week.
I had never read a graphic novel before, and I never realized the amazing and powerful stories that can be told through them. It has made me re-think the form in which I write my memoir. Because you can tell a story chronologically and a graphic novel can make it pop, whereas just text can be a bit monotonous.
Add steroid-induced stupidity to the list, as I spelled steroid wrong throughout.
If you are interested in learning more about graphic novels, there is a whole genre about illness. Specifically, I recommend Mom’s Cancer by Brian Fies, Stitches by David Small, and Cancer Vixen by Marisa Acocella Marchetto.
I would love to hear your thoughts on mine, and as I said, stayed tuned for the computerized version.
I had my
last appointment with my rheumatologist in Michigan in August, then I had my
first appointment with my new rheum in November and a follow-up in
As of now,
I don’t have another appointment scheduled.
weaning off of methylprednisolone…finally!
I’ve gone from 8 mg a day, to 6 mg for two weeks, 4 mg for two weeks,
and I’m decreasing to 2 mg at the end of this week. It’s a long process, which will be the
subject of a post sometime in the next few weeks.
certainly continue to have aches and pains, and even swelling, especially in my
knees, hips, hands, and wrists.
think I’m in remission. I’m on too many
meds, and am not sure where I would be without them. But from this combination of meds, my liver
levels are normal for the first time in eight years. My kidney levels continue to border on abnormal, but hold steady enough to
not be a concern at this point.
had a rash on the side of my neck and shoulders that turned out to be fungal, a
minor result of an overactive immune system that is being held at bay by meds
that suppress my immune system.
the struggle for those of us who have these kinds of diseases. We have immune systems that mistake our own bodies
for foreign invaders and the only real remedy is to take meds that deplete that
same immune system.
reality, while I might be in an okay place, these illnesses are never far from
my mind…or my heart…
weekends ago, I was commenting on the fact that I’ve been doing pretty well,
and the next day, I could barely get out of bed.
I get cocky, my illnesses smart me!
that where I’m at right now is probably not likely to be a place I will be
forever. And I hope that when I get to a
difficult place, I am able to cope with it.
I’m not complaining.
hard to know what and how to feel about this period of comparative wellness, a
place that I really don’t feel I have ever been in the last seven years.
know that I have these illnesses. It’s a
constant game of tug-of-war.
I’m not totally jinxing myself by writing this post.
This month, I asked
people how they cope with the winter blues.This has been a particularly long and hard winter, especially in my home
state of Michigan and here in New York.And those who know me well, know that I’m a summer baby, so needless to
say, I’ve had enough.
I’ve actually been looking for a new pill case for awhile
because the one I used before just wasn’t meeting muster.It was clunky and hard to open.And blame it on my lupus brain, but there
were several times when I mixed up the end, and ended up taking Saturday’s
pills instead of Sunday’s or vice versa.And if you are on a pill that varies, this is a huge problem.
So this one is so out!
Sabi is so in! (Pills not included!)
+ Sleek design
+ Easy to open
+ Won’t come open on its own
+ I did a shake test, and you can shake the thing around
like it’s a maraca, and all of the pills stayed in there respective grooves
+ Can’t get days confused
+ Holds a full week of pills, with a.m. and p.m. grooves for
+ When held vertically, looks like one of those fancy
- Not see through, which means you have to be a bit more
vigilant about making sure you take your medication
- Fits a relatively good amount of medication, but depending
on the size of the pills you take, may not fit all of them
This Folio sells for $24.99.They have a larger version for $29.99.These are a bit on the pricey side, but they really have a great design
and are much better than the plastic job I used to have (see above).
They have some other really cool pill holders, as well.